Roses are red.
Violets are blue.
Your customer service sucks completely.
I hate dealing with you.
Mad props to the call center dude who doesn’t really speak or understand English (especially English from the south) who asked me a bunch of pointless questions, put me on hold for 10 minutes, asked me the same pointless questions again and rudely, put me on hold again, and then hung up on me when I asked to be transferred to a supervisor.
Karma, my friend, karma.
Still waiting on the rheumy appointment and now waiting on refills since my insurance changed on January 1st. Having to get everything re-referred and re-preauthorized during a flare does not make me the happiest person in the world.
Dear Dr. (insert your name here),
First and foremost, let me tell you that I’d so much rather be shoe shopping than rheumatologist shopping. To put things in perspective, I’ve never gone shoe shopping and left with 5 vials less blood than I came with. Rheumatologist shopping…different story.
I’m really frustrated.
I think I’m a pretty good patient. I like to understand and learn as much as I can about my disease state, what exactly is going on in each joint affected, why certain bloodwork is ordered, how my medications work, different options for treatment etc so I can have informed discussions with you. I do not believe in blind faith as far as medical care is concerned, especially MY medical care.
In return, I do ask a few things of you. I expect you to listen to my medical history, understand my goals, respect my concerns, and work with me to find a mutually agreed upon plan. Specifically, I am open to resuming methotrexate if you are open to me not resuming it. I’m not trying to tell you how to do your job or play games. But I am telling you that I’ve had minimal success on it and I would like for you to look at my medical history, think about it, and see if you can come up with a better idea. That’s all. If you think it through and still think you’d like me to try it, sure, I’m game. I do realize that practicing medicine is exactly that: practicing.
But I do ask that you practice- don’t just give me what you give all your other patients.
I don’t think I’m asking the world here and this is not just about methotrexate, although that is a sticking point with me. I would just like your time and thoughtfulness before you stick me on any strong medication or other uncomfortable course of treatment that (let’s be honest here) you’ve probably never taken yourself and don’t have firsthand experience of trying to function with the side effects of in your daily life.
Here’s to hoping that the next one of you is better!
Something curious has happened to me lately and I’ve been a little nervous to mention it for fear of jinxing myself. Several months ago, when my health insurance was cancelled by my douchy ex-employer and I had to put myself on a craptastic emergency policy that covered only $100 per month in prescription medication, I made a decision to cut some dosages in half or more so that I could make it until my new insurance with my new job picked up. You may have noticed in my meds tab that as of April 09 I was taking:
-1 Humira injection/week
-6 methotrexate/ week
Well, to make a long story short, I have been taking the following for the past month and a half:
-1 Humira injection/ bi-weeekly
AND I HAVEN’T HAD ANY PROBLEMS. In fact, my joints just may feel a tiny bit better right now. Now, this was a decision made out of necessity rather than a consultation with my dr, although I did tell my dr I wouldn’t take the mtx anymore because it tore up my stomach so bad. The Aleve was cut because I ran out and didn’t have time to go buy more. When I did finally get more, I realized that I hadn’t taken it in a week.
I CAN’T REMEMBER THE LAST TIME I ONLY TOOK 3 PILLS A DAY!!!!
I do realize that this could change on RA’s whim but for right now, I’m really excited.
I’m afraid to say definitely because the past few months have been like being on a roller coaster with a stomach full of candy apples, corn dogs, and blue slushy. Blllleeeeecccchhh. Don’t you appreciate my visuals?
I like my job. It’s nice to have a job where I don’t have to manage anyone, have measurable goals that don’t change by the hour, and don’t wonder on my drive in if I’m going to get there to find the doors chained shut.
I love my condo. It’s in an old neighborhood- very Gone With The Wind esque with gigantic gracious trees, old massive houses, and (what I’m most excited about) A PARK that I can walk to in less than 5 minutes that has free outdoor concerts several nights a week. I do not love having to fit a 3 bedroom house into a 2 bedroom condo. But I do love the $500 I’ve made on Craigslist in the past 2 weeks.
My RA is doing better. I’ve spent the past few months feeling like I was getting ready to flare and then nothing would come of it. And then feeling like I was getting ready to flare and then nothing would come of it. Rinse and repeat. I still feel a little bit of it but not as badl. I live next door to a friend from college who has celiac disease and she’s teaching me about gluten free diets. I’m thinking about giving it a whirl but probably won’t. This girl loves her carbs! My friend is also super into yoga and I’m probably going to try that, if I can find a class that isn’t competitive. The last class I went to felt that way so that’s why I haven’t gone back.
I’m a little worried because my new health insurance doesn’t kick in until Sept 1st and I have exactly enough Humira to get through as long as I stick to bi-weekly. Knock on wood please!
All in all, off to a good start. I think.
You make lemonade.
When life gives you shit, make nothing.
So, that’s what I’ve been doing these last couple of weeks. Making nothing. This will hopefully be resolved in the next couple of days though at which point, I will give you a complete update.
Until then, fingers crossed, knocking on wood!!!