One of my all time favorite movies will always be Annie and one of my favorite moments of that movie has always been the song It’s A Hard Knock Life.
Someone asked me recently if I ever get tired of having to constantly put thought into managing my life and RA. It caught me off guard because I don’t think I’ve ever really thought about it. My immediate answer was YES! SO MUCH RESPONSIBILITY! And it immediately reminded me of that song.
Orphans making beds, running to mop floors, sliding down stairs to clean rails, dancing across beds to smuggle a girl out in the laundry…well maybe not that last part.
Me making all my food at home because I’m sensitive to certain ingredients and limit additives. Me having to plan stretching and range of motion exercises into my morning and evening schedule or I pay for it. Me scheduling my work week and work travel in a way that I am able to at least get 8 hours of sleep and at least one ‘down’ day. I could go on but I think you get where I’m going.
Living with RA, even though I’m stable, can really really be a hard knock life.
I think that’s true of life with any chronic illness.
I’ve found that, for me; I’m able to successfully manage my health but it does take a lot of work, a lot of planning, a lot of finagling, a lot of prioritizing your health over things you’d rather be doing.
And sometimes, I’m just overwhelmed and sick of all of that responsibility.
Sometimes, I even rebel.
But when I do, I pay for it and have to work twice as hard to get everything back to baseline.
I really really wish I could smuggle myself away from RA in a laundry cart.