Sometimes I really don’t know what to write about…and sometimes I think that the details of my life will bore you if I don’t have a lot to say about RA. It’s crazy how I compartmentalize. I rarely talk to the people I see on a daily basis about RA, yet I feel weird writing on my blog about anything unrelated.
I’ve decided though that living with RA makes all events relevant, especially when I’m feeling good. So here’s the skinny on what I’m up to right now!
A few weeks ago, I went to Washington DC to participate in the ACR’s Capitol Hill Fly in. For those of you unfamiliar, this is a yearly advocacy event that pairs doctors and patients together to meet with lawmakers to discuss policy that affects our community. We talked a TON about access to care, access to treatments and medications among other topics. I had a GREAT team and it was a lot of fun!
The funniest part? They called our team up to role play a meeting with a real live actual Senator. Did we know this was going to happen? Nope. While speaking about access to treatments/medications, I stated that due to Tier 4 pricing, my biologic medication is $700 per month. The senator frowned and said ‘that’s $8,000 a year.’ I smiled and said ‘actually, it’s $8,400.’
Many thanks to whatever spirit chose to inhabit me at that moment and do accurate math! On the spot! In front of people!
That will most likely never happen again! But I felt very smart. Yay for successful basic multiplication skills.
Next up, I just started xeljanz. I am a month in and quite pleased thus far. I realized last week that things that used to always have a dull ache no longer do. Plus, I am psyched to no longer have to give myself shots. Even though I’ve done it for years, I’m by no means a nurse and have bruised the heck out of myself many, many times.
This past weekend, my much better ankle cooperated and allowed me to visit Greenville, SC. Ok, it would’ve let me visit either way but I walked all around town with no issue. I saw several old friends and got to see my cousin perform in the Broadway tour of Once! If you’re thinking about going, I highly recommend. Very well done show!
And that’s the highlight reel! Oh yeah, and I turned 35 a few weeks ago. (Ugh)
Up next: how I’ve fallen off the fitness wagon since moving and how I’ll be jumping back in!