World Arthritis Day

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(Note: OH.MY.GOODNESS.  Auto post failed me  today.  This was supposed to post at midnight last night.)

So it’s World Arthritis Day today, Amanda.  What would you like?

I’d really like to NOT have arthritis but apparently that doesn’t seem to be an option nowadays so let’s see…

I would like…(rubs chin)

-a massage

-CARBS

-my way with James Franco

Hmmmm.

I’d also like an easy button.

I realize I will probably only get the first two things on my list this year.  But I’d like to think that we’re approaching my ‘easy button.’

You see, an easy button to me would not just be hitting the big red buzzer and immediately being Rheumatoid Arthritis free.

For me, an easy button could involve never having a lay person scratch their head and inquire if I have tried ASPIRIN yet.  Well geez.  I have a rheumatologist, a nutritionist, at times a physical therapist, and at times a shrink.  You know, Mr. Lay Person, I think you’re on to something there.  I don’t think that those four very well educated minds have ever thought of seeing if they could control my symptoms with Aspirin.  Nope, they just skipped straight to low grade CHEMO for shits and giggles.  FOR THE LOVE OF GOD.

An easy button could involve never having someone attempt to commiserate with me by offering up the stiffness they have in their elbow from all that tennis.  Yep, that’s how my pointer fingers hurt.  From all that tennis.  The best part is when I go on a short run and come home to immediately have my right jaw start aching.  I’ll spend the whole next day resting my jaw.  Then my right knee will hurt for a couple hours. No reason. Just because.

Damn tennis.

An easy button would make it to where I never have to explain to someone that it is INDEED possible to sleep 12 hours straight and still be exhausted.  Mind numbing, bone crushing, can’t put sentences together exhausted.  Tips hat to methotrexate.  Unless you’ve been there, you have no clue how tired I can be at times.

Please note that I’m trying to make a point.  I’m doing ok right now.

But we have made progress.  Just last month, the Arthritis Act passed the House of Representatives.  Companies are taking a more active interest in both marketing to our specific patient population as well as taking time to make sure they are accurately portraying us in the media.  Important steps certainly but not yet enough.

In honor of World Arthritis Day, please help me move closer to creating my easy button by participating in IAAM’s global awareness event.

IAAM, the 1st nonprofit in history that focuses exclusively on the 7 Autoimmune Arthritis diseases, is asking you to participate in this global awareness event by forwarding and posting this newsletter and, if possible, purchasing one of the 3 awareness designs shown on the publication.  These items can be purchased by visiting the IAAM website at www.IAAMovement.org.   (The awareness designs range from $5-15 with 100% of the proceeds donated to IAAM to create future awareness programs).

 

4 responses »

  1. I would like to suggest you visit http://www.roadback.org and look into low dose, long term antibiotic therapy.

    There is also a book you can read on the subject. “The New Arthritis Breakthrough, Including Dr. Brown’s classic, The Road Back by Henry Scammell”

    I can’t offer much in the way of info, since I am new to it myself, but I sure wish someone would’ve told me about it years ago.

    Take care,
    Gina

    • Thanks Gina! I’m actually familiar with both. Are you trying AP? I really want to but not until I finish this drug study!
      Sent on the Sprint® Now Network from my BlackBerry®

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